Rose will see her 'Dream Come True' New Milford girl to visit Disney World soon
New Milford girl to visit Disney World soon
Four-year-old Rose Schuette is looking forward to having dinner with Cinderella at Disney World. For Rose, this will be a dream come true.
Rose's trip to Florida will be paid by Dream Come True of Western Connecticut. She has juvenile rheumatoid arthritis and is just the sort of recipient of dream fulfillment to whom the organization grants wishes.
Margaret Tamas, a volunteer manager and member of the organization's Board of Directors, happened to be following up on another recipient of a Dream Come True gift when she met Rose's mother, Alice Schuette.
Mrs. Schuette told her of Rose's condition.
"I went to the house and asked Rose what her dream was," Ms. Tamas said. "She told me, 'I want to go and meet Cinderella and the Fairy Godmother.' I said sometimes they were very busy. What if they couldn't meet with her?"
" 'Then I want to go to Disney World and pick flowers,' " Ms. Tamas said Rose told her. "I knew Disney World was the trip for her."
Rose was diagnosed with rheumatoid arthritis when she was just 10 months old. Her joints swell and ache, rendering activities like dancing in her ballet class painful at times. Yet Rose still loves to dance.
"The other day she was dancing in the living room, twirling around when she said, 'Mommy, you know my legs really hurt,'" said Alice Schuette, Rose's mother. "Some kids grow out of the disease and other people have it all their lives."
Rose is fortunate that a medication was developed 15 years ago that helps alleviate the symptoms of her disease, Mrs. Schuette said. The Schuettes attend conferences on juvenile rheumatoid arthritis and have met many people in their 20s who have already had to have joints replaced because of the disease.
Hopefully, Rose will be spared that thanks to medical developments, Mrs. Schuette said.
For Rose, life consists of dancing, playing with her older sister, Grace, and planning her trip to Disney World in October with Grace, her mom and her dad, Michael.
She doesn't think about having juvenile rheumatoid arthritis except when her joints ache painfully. That's the blessing of being 4, Mrs. Schuette said -- and having an organization like Dream Come True around to brighten her future.
Mrs. Schuette became aware of the organization when she wrote a free-lance story for The News-Times, trhe sister paper to The Spectrum, about an arthritis walk that featured a boy from Newtown with juvenile rheumatoid arthritis.
Dream Come True of Western Connecticut is volunteer based in Litchfield, Fairfield and New Haven counties. Donations can be made by visiting www.dreamcometruect.org.