Feels 'incredible support' helps Julia's Wings
Published 5:08 pm, Tuesday, November 25, 2014
To the Editor:
Julia's Wings once again soared through the streets of Kent at our second annual Team Julia's Wings at the Oct. 26 Kent Pumpkin Run.
Team Julia's Wings had an impressive turnout of 340 runners/walkers, which was almost 100 more participants than the year before.
A sea of red jerseys with the Aplastic Anemia awareness ribbon on the front and wings on the back were predominant at the race.
Not only did JWF raise awareness of aplastic anemia, but the foundation raised more than $45,000. We are so appreciative of the support and generosity of our sponsors, donors and participants.
JWF has partnered with the Aplastic Anemia and MDS International Foundation, who will match our fundraising dollars for two named research funds.
This investment in medical research can truly make a difference with this disease, so hopefully other children and families will not have to know the pain and suffering aplastic anemia brought into our lives.
A second Julia Malsin research grant in the amount of $60,000 will be dispersed in 2016.
Any additional funds raised from this year's run will go directly toward assisting families with children battling aplastic anemia as we are working in partnership with Children's Hospital Boston, Connecticut Children's Medical Center and Yale-New Haven Hospital.
It is such a humbling experience to disperse a grant to a family who is struggling to financially stay afloat and care for its critically ill child.
None of these tremendous successes would be possible without the incredible support of so many.
The foundation is so thankful to the Kent Chamber of Commerce for allowing us to be part of such an amazing event, the incredibly generous sponsors and to all those who participated and so graciously donated.
Julia is an incredible example of pure goodness and we strive every day to live by her example.
We are so grateful and appreciative of all the support we receive for our foundation. Without you, we wouldn't be able to fulfill Julia's wish of keeping families together during their illness and our wish that a child may be saved one day through much-needed research.
For more information about Julia's story and Julia's Wings Foundation, please visit www.juliaswing.org and like us on Facebook.